Browsing Category Daily Living

Can We Eat Gluten Again? The Celiac Wonder Drug – AVL003.

Even if you don’t really know what celiac disease or gluten intolerance is, you know the treatment. Everyone knows at least that one person who says, “oh, I can’t eat that. I have… (fill in the blank) “ celiac, gluten intolerance, I’m trying to be gluten free for health reasons… et cetera. The treatment for these things is incredibly socially constraining and culturally limiting – you can’t eat gluten. It’s Seinfeld’s soup nazi becoming the gluten nazi in your body screaming “No gluten for you!” No bread, no soy sauce, no barley, no beer, no alcohols made from grain unless well distilled, no Starbucks Frappuccino Lights… on and on it goes.

While the last few years have spawned a greater awareness of issues with gluten and created a whole new range of gluten free foods, we still do not have any real “treatment” other than abstinence. We all know how well that has been working for the some of the schools out there with sex ed. Maybe that doesn’t really apply here but seriously – some of us may try to cheat on the diet and we pay for it. Or some of us are OK with paying for it. Personally, I can do without the brain fog…

But AVL003 is trying to change the game.

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The Sacrifice of Nursing – The Things They Never Teach You in Nursing School.

No one wakes up one day and says to herself,

I feel like working 12 hour shifts. 12 hour shifts where I can neither have my own time to eat, pee, and where my coworkers take out their own version of ‘hangry’ and burned out on me.

No. We wake up one day and say,

I see you there. I see that you’re hurting and I see that this is hard and I want to find a way to make it better for you.

We enter the field with hopes and dreams. We can save the world and our intentions are well meant and sound. They even come with some perks; decent pay, 3 day a week work schedule and sometimes even schedule flexibility.

When you start into this field, you hear the quiet whispering — the hints, warnings, from other nurses. Be careful, they’ll say, they eat their young here. If you thought nursing school was hard, you’ll re-learn everything in your first year out of school. School was merely scratching the surface. There are so many things, though, that they fail to teach you in nursing school.

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Teaching My Baby To Fail – The Pursuit of Happiness

It may seem counterintuitive; it feels like we live in a society that says success, success, success.  If you don’t get the A, you aren’t good enough.  If you don’t get the Ivy League degree, you aren’t good enough.  If you don’t, then you aren’t.  Everything is a competition against the person next to you that is doing it so much better.  Build a better, stronger, more competitive resume.  More time, longer work hours, stronger commitments.  Strive for the American Dream.  Strive for accomplishment and titles at the end of your name.  DNP, PHD, RN, BSN, MHP…

In the American Declaration of Independence, our Founding Fathers proclaimed that we are endowed by our Creator with the unalienable right to the pursuit of happiness. (Townhall.com)

What exactly did the founding fathers mean when they said we had the “right to the pursuit of happiness”?  Is the pursuit of happiness the pursuit of things?  Degrees? Grades? Practical jobs? Is it temporary moments of happiness?  Is it a 60 hour work week at a place makes us miserable?  Is it peer pressure?  Is it social constraints?  Is it judging others?

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Flipping the Switch – Turning Celiac On

For many people, this has been their lives.  They’ve had symptoms from the beginning – and sometimes, they’ve never known they had symptoms.  Me?  My celiac story isn’t quite like that.  If you didn’t start off with celiac disease, the theory is that stressful events are the culprit.  It’s basically like turning on the lights in the house – Celiac walks in the door and opens all the lights.  Your HLA gene has turned on.

I got lucky.  My primary care doctor had, two weeks before I got SUPER sick, been to a conference on celiac.  He said, “your symptoms aren’t normal but let’s just check.”

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Gluten Free Banana Nut Bread – Baking Tips from Experience

Gluten free baking isn’t easy.  Recipes are often dry, crumbly, and even not tasty.  In our last two years, we’ve thrown away our fair share of baking experiments.  Here’s a recipe that my husband recently did and modified slightly.  First you’ll find the Original recipe below and (and can find it on Taste of Home).  Keep reading – I’ll share some of his cheats.

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Celiac – The Top 5 Reasons that I Don’t Hate You (Anymore)

I don’t know the moment that it happened and I can’t tell you that I even realized it.  Somewhere, sometime, in the last two years… I stopped hating celiac disease and I started to see the positives in it.  Sure, there’s plenty of negatives in it but after navigating my social life through the Kubler-Ross’ 5 Stages of Grief (Anger, denial, acceptance, bargaining and depression), something clicked.

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The Never Ending Awkward Moments of Celiac

Start Rant of Awkward Moments.

Ever worked in health care?  Or anywhere, really, where lunches are provided or people bring in goodies?

I’m in the health care realm.  I’ve been a nurse since 2009 but have been in healthcare since 2006 or so.  In health care, we celebrate birthdays, events, Fridays, holidays… and we celebrate these many things with food.  What kind of food, you so considerately ask?  Cake.  Cookies.  Brownies.  Bagels.  Cupcakes. Toast.  Sandwiches.  If it has gluten in it, someone will find a way to make sure it is in the Bermuda triangle of work food.

So… what does that mean for the celiac?  This is even more true for the newly diagnosed celiac but you get to turn into the party pooper.  You get to say ‘Thanks, but no thanks.’  It happens every time and you have to plan ahead.

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Hello, world… I’m here!

Well, how did that happen?  Do most people just wake up one day and say, it sounds like a good day to start writing a blog?  I’ve been thinking about this since I got diagnosed back in 2013.  It’s been there and had several iterations before you found me here.  This baby, though?  He, she, it, we don’t know yet — has changed everything.  It’s been one thing when the celiac impacts you — simply me.  It became another thing when my at-the-time boyfriend got diagnosed 2 months later.  But it was us.  It was us against gluten.

But now… I’ve been given 8 months to think about all the things out of my control with a little one on the way.  It’s our first and while I’m a nurse by trade — raising a baby is not on the list of things covered in nursing school.  Raising a baby that has a high propensity for celiac disease and not willing to bring gluten in the house to find out… is definitely not a course in nursing school.

Leave a comment.  Say hello and bear with me as we figure this out together.

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